When patients are diagnosed with a condition or disease, it can often feel scary and isolating. However, by banding together in communities, patients can gain empowerment and meaning. Patient groups play an invaluable role by providing holistic support, resources, advocacy and more. This article explores… Read More »The Power of Community: How Patient Groups Create Meaningful Impact
We are excited to join the rest of the world to celebrate the 10th World Sickle Cell Awareness Day! As such, we’re launching a 10 days Sickle Cell Awareness Campaign, starting today June 10th to June 19th. During these ten days, we will share memes, quotes, poetry, pictures and any content which raises awareness about sickle cell on our social media as well as the website.
There are a couple of ways we would also like you to join us create awareness:
Let’s start at the beginning. What is Sickle Cell Disease? You must have heard or read a lot of scientific talk and jargon, but let me break it down and explain everything for you; the what, how and why of this disease and why we… Read More »What is Sickle Cell Disease? Dr. Ngwengi Answers.
Sickle-cell anaemia (also known as sickle-cell disorder or disease) is a common genetic condition due to a haemoglobin disorder, which is inherited from generally healthy parents with mutant haemoglobin genes (WHO 2006). Sickle cell anaemia is prevalent in Africa, the Middle East, and parts of… Read More »Sickle Cell Disease Prevalence in Cameroon
A mother’s journey of hope and prayer in her son’s battle against sickle cell disease. Taking care of my son, a sickle cell patient about to receive a stem cell transplant, was a season filled with mixed feelings. Sometimes optimism, other times, despair. I was… Read More »The Hard Part… 1/2